Sadie Higuera wasn't expected to live paste age of two, but she recently celebrated her 5th birthday thanks to the medical marijuana that saved her life. Sadie lives with a rare genetic disorder called Schnizel–Giedion Syndrome (SGS), which - as her father Brian explains - comes with a host of severe symptoms.
"Lots of medical conditions. Like severe hydrophanous of the kidneys, severe epilepsy - she’s missing part of the corpus callosum of her brain, the part that separates the brain," Brian Higuera told Fox 5. "There are also tumors that kill SGS babies."
Her parents say that it wasn't until Sadie's neurologist told them that her condition was likely terminal that they decided to give their daughter the cannabis extract CBD in a last-ditch effort to save her life.
"Her neurologist said at an appointment, 'You know, there’s nothing else left to try with Sadie and we suggest you give her a drug that will most likely end her life - she'll pass away within the next two months.' It was that evening on the way home that we decided to try medical cannabis," Brian said. "It was probably about 10 minutes after giving it to her that I noticed she wasn’t shaking as much, that her eyes weren’t trembling. They were kind of following me."
While Sadie will likely never lead an entirely normal life, things have greatly improved for her and her family is happy to see their daughter's personality - once buried under the laundry-list of pharmaceuticals she was taking - is now shining through again.
"The CBD, the cannabis, it gave us hope. And we were just starting it as a compassionate care [option] to see her off peacefully. So when she started doing better, it just warmed my heart so much," Brian explained.
"I just take joy with every day with her. I mean seeing her smile again and [be vocal] is one new accomplishment."